Thursday, September 24, 2009

Do you feel alright????

Today was not a great day at our house..Doug had one of his attacks..dizzy....vomitting..not a fun time!!!

He was diagnosed in 2003 with Meniere's Disease.  He has been suffering with this on and off for the past six years.  We thought he had finally found a doctor who could help him. Doug was going to Saint Paul's Hospital about once a month since March for steroid injections into his ear...this seemed to alleviate the attacks..that was until today!! 

He had gone for an appointment last week and was told that the hole in his eardrum was all healed over and he did not need an injection...the doctor he saw was not the regular one he usually sees...CAN YOU SAY STUPID!!!

We have now come to the conclusion that when there is a hole from the needles in his ear drum it reduces the pressure ..hence no attacks!!..well he is going back next week to get a hole in his eardrum again!!!


Signs & Symptoms of Meniere's Disease

Unlike many other disorders, Meniere's Disease doesn't really have a "cause". At least, no one has discovered one yet.

Therefore you wouldn't try to eliminate the cause in order to get relief: you would work on the symptoms that give you the most trouble. In this case, for Meniere's people it usually is the vertigo, (loss of balance) tinnitus, (ringing or a roaring sound in the ear), and a degrees of hearing loss.

One of these unpleasant experiences of Meniere's is called an "attack".
Typically, an attack is characterized by a combination of vertigo, tinnitus, and hearing loss and lasts several hours. But people experience these discomforts at varying frequency, duration, and intensity.

Some people feel nauseated and vomit during an attack (because of the spinning feeling). Some people also notice some hearing loss, especially with sounds that have a low tone.
Some may feel slight vertigo (loss of balance) a few times a year. Others may be occasionally disturbed by intense, uncontrollable tinnitus, (ringing in the ear) while sleeping.

Other Meniere's disease sufferers may notice a fluctuating hearing loss and feel unsteady all day long for prolonged periods.

Many of these attacks have a sudden onset with no warning. So it's difficult to be prepared. It's also very scary for anyone around the sufferer.

The vertigo and dizziness are described as a spinning or whirling feeling and may cause problems with balance (feeling unstable while walking). Dizziness is not quite the same as vertigo. Dizziness is more like lightheadedness.

 It's not nearly as severe in its balance problems as is vertigo.
Vertigo, often the most debilitating symptom of Meniere's disease, forces the sufferer to lie down. Vertigo attacks can lead to severe nausea, vomiting, and sweating and again, come with little or no warning.

Tinnitus, (ringing or a roaring sound in the ear), causes great frustration. The person can't hear above the internal noise: there fore gets left out of conversations and activities. Moreover the noise itself is very irritating. That causes stress. Tinnitus can be a very difficult problem to treat in many individuals and can be quite disrupting to their lifestyle.

Loss of hearing causes many of the same problems as the tinnitus plus it adds its own. The first stage of hearing loss affects the ability to hear low voices and tones. As it progresses, less and less is heard. Again this leads to depression and a feeling of abandonment.

The family must be extra aware of all of these side issues. Not only is the person himself feeling emotional and physical pain, but they are also placing extra burden on the family. And they are aware of this. That all leads to more depression.

A person's hearing tends to recover between attacks but over time the symptoms become worse. People also mention feeling of fullness or pressure in the ear. (Or popping, buzzing, or clicking).
As well the following symptoms are mentioned, but not as often as the top three. Again, our bodies are all different: so the reactions would naturally be different.

People talk about feeling extreme fatigue and exhaustion, nausea, & vomiting, the inability to concentrate, distraction, poor memory, confusion, and disorientation. We hear about extreme sensitivity to noise, light sensitivity, headaches, and night blindness. There are complaints of muscle and joint pain, and malaise due to atmospheric pressure changes. Because of these uncontrollable and depressing attacks, some people experience panic attacks.

When he was first diagnosed they thought he had a pituitary tumor..if only it would have been that simple..this disease has dibilitating symptons cure..just treatments...if only they would have given him an injection last week..??? We finally find something that actually works and now we are back to wondering where and when the next attack will occur..he was doing so well...we had almost forgotten  about it (well at least it was out of our minds for a little while)..but it's back with a vengance!!!

We have not missed these sessions!!...we can only hope that tommorrow will be a better day!!



1 comment:

  1. Hope Doug is feeling better soon! Meanwhile, it's National Dog Week, and we're extending best wishes to our Canadian canine friend Tuckmeister!


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